One of the first signs of neurofibromatosis (type 1) on a baby are café au lait birthmarks. They are harmless and often just called "beauty marks”, but in reality they are the hallmark of an unpredictable genetic condition that can vary in severity. Neurofibromatosis is not contagious; it has a range of seemingly unrelated symptoms, including tumors, learning disabilities, and scoliosis, that make it complicated to understand.
Just as those who know and love cancer patients will shave their own heads in solidarity and support of their loved ones in treatment, those who know and love NF patients will show their solidarity and support by donning beauty marks—temporary tattoos, face paint, body paint, “war paint.”
For more information, visit BeautyMarkNation.org.