Neurofibromatosis affects more people than cystic fibrosis and muscular dystrophy combined, yet most people have never heard of it.

Many people have trouble pronouncing neurofibromatosis.

Every day we are encouraging people to participate in our #TheWordIs campaign to generate more awareness of neurofibromatosis and the people this disorder affects. Our goal is to spread the word “neurofibromatosis” across social media so that it is known in every household.

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